This disorder as with many mental health conditions has been within the public eye through the use of television programmes based on Hoarding such as; Obsessive Compulsive Hoarder, The Hoarder Next Door and Britain’s Biggest Hoarders. These are often presented as extreme cases whereby other services have had to become involved to help the person discard personal possessions.
So, what is Hoarding?
Hoarding disorder is characterised by persistent difficulty discarding or parting with possessions, regardless of their value as a result of a strong perceived need to save the items and the distress associated
with parting from them. This disorder however differs from ‘normal collecting’ as, the symptoms of this disorder result in the accumulation of a large number of possessions that take over, clutter active living areas to the extent that their intended use is substantially compromised. This disorder consists of excessive collecting, buying or stealing items that are not actually recquired for which there is no available space and stored in a chaotic manner.
Diagnostic Criteria
A. Persistent difficulty discarding or parting with possessions, regardless of their actual value.
B. This difficult is due to the perceived need to save the items and to distress associated with discarding them.
C. This difficulty discarding possessions results in the accumulation of possessions that congest and clutter active living areas and substantially compromises their intended use. If living areas are uncluttered, it is only because of the interventions of third parties e.g. family members, authorities or cleaners.
D. The hoarding causes clinically significant distress or impairment in social, occupational,or other important areas of functioning (including maintaining a safe environment for self and others).
E. The hoarding is not attributable to another medical condition (e.g., brain injury, cerebrovascular disease, Prader-Willi syndrome).
F. The hoarding is not better explained by the symptoms of another mental disorder (e.g.,obsessions in obsessive-compulsive disorder, decreased energy in major depressive disorder, delusions in schizophrenia or another psychotic disorder, cognitive deficits in
major neurocognitive disorder, restricted interests in autism spectrum disorder).
Specifiers
With excessive acquisition; to put it bluntly this specifier is linked with the nature of acquisition’…e.g. the extreme severity of the situation- are they buying these possessions? Sought out for free or stolen?
According to the DSM-5, approx. 80-90% of individuals display excessive acquisition. The most frequent form of acquisition is excessive buying, followed by acquisition of free items e.g. leaflets. Stealing is less common. Some people deny excessive acquisition when first assessed, yet it may appear later in their course of treatment. Individuals typically experience distress if they are unable or prevented from acquiring items.
With good or fair insight; the person recognises that their beliefs are problematic.
With poor insight; the person recognises that their beliefs and behaviours are not problematic despite evidence on the contrary.
With absent insight/ delusional beliefs; The person is utterly convinced that their beliefs and behaviours are not problematic despite contrary evidence.
Diagnostic Criteria
The essential feature of hoarding is the persistent difficulties discarding parting with possessions, regardless of actual value (Criterion A).
The term persistent indicates a long-standing difficulty rather than more transient life circumstances that may lead to excessive clutter e.g. inheriting a property.
The difficulty in discarding possessions refers to any form of discarding e.g. throwing away, selling, giving away or recycling. The main reasons for these issues are due to the perception that the possessions can be utilised, may have aesthetic value or sentimental attachment. Some individuals feel responsible for the fate of their possessions and often go to great lengths to avoid waste. Fear of losing important information is also common. Commonly saved items are; newspapers, magazines, old clothing, bags, books, mail and paperwork but virtually any item can be saved or hoarded. It must also be noted that hoarded items do not have to have little value but can also be more valuable and these items can be seemingly mixed with the clutter and chaotic hoarded possessions.
People with hoarding disorder purposefully save possessions and experience distress when facing the prospect of discarding them (Criterion B). This criteria emphasises that saving these possessions are intentional, which discriminated hoarding disorder from other forms of mental illness that are characterised by the passive accumulation of items or the absence of distress with the items are removed.
Individuals accumulate large numbers of items that fill up and clutter active living areas to the extent that their intended use is no longer possible (Criterion C). For example, the person may not be able to prepare food in their kitchen or are forced to sleep on their sofa. If the space can be used, it is only with great difficulty.
Clutter is defined as a large group of usually unrelated or marginally related objects piled together in a disorganised fashion in spaces designed for other purposes e.g. tabletops, floors, hallway.
Criterion C emphasises the ‘active living areas’ of the hom
e, rather than more peripheral areas such as; garages, attics or basements, that are usually cluttered in homes where people do not suffer from Hoarding disorder. However, people with hoarding disorder often have possessions that spill beyond the active living areas and occupy and impair the use of living spaces and other spaces such as; vehicles, yards, gardens and storage spaces. In some cases however, living areas may be uncluttered due to the intervention of third parties such as family members this may then force the person to undertake renting storage units or using other spaces to hold their possessions.
Hoarding disorder is distinctively different from normal collecting behaviour as collecting is usually systematic and organised. The actual amount of possessions may be similar however the storage of these possessions is obviously different as normative collecting does not produce the clutter, distress or impairment of typical hoarding disorder.
Criterion D outlines that symptoms must cause clinically significant distress or impairment in normal functioning. In some cases where a person has poor insight the person may not report distress and the impairment may be only apparent to people around them. However, any attempts to discard or clear the possessions by other parties results in high levels of stress.
Prevalence, Development and Course of Hoarding Disorder
Figures from Help for Hoarders UK suggest that approximately 2-5% of the UK population, potentially over 1.2 million people suffer from Hoarding disorder where clinical, psychological help may be required.
According to the DSM-5 Hoarding Disorder affects both males and females however, epidemiological studies suggest that there is a significantly greater prevalence in males compared to clinical samples which predominantly feature females.
Hoarding symptoms appear to begin early in life and spans well into late stages of life. These symptoms are reported to emerge around ages 11-15 years old, they start to interfere with daily functioning in the mid 20’s and cause clinically significant impairment by the mid-30’s. Once symptoms are presented of Hoarding the course of hoarding is often chronic as these symptoms tend to increasingly become more severe throughout their life span.
Risk and Prognostic Factors
Tempremental; Indecisiveness according to the DSM is a prominent featutre of an individual with hoarding. As they are unable to come to a clear decision about whether a possession may be required in the future and therefore keep it to be on the safe side.
Environmental; Individuals with hoarding disorder often retrospectively report stressful and traumatic life events preceding to the onset of the disorder or the traumatic event may exacerbate the development of the disorder.
Genetic and Physiological; Hoarding disorder is believed to be familial with about 50% of people who hoard report having a relative whom also hoards. Twin studies suggest that 50% of variability in hoarding behaviour is due to genetic factors.
Interaction; The DSM states that their is evidence to suggest a genetic link to hoarding disorder. However, this may also be due to the person’s environment; sharing environments with a person who hoards may impart beliefs and understanding within their own children’s mind which may increase the likelihood of them picking up on hoarding behaviours and developing the disorder themselves.
GENETICS + ENVIRONMENT = POTENTIAL DISORDER
Treatment
The NHS website outlines the treatment for individuals suffering from Hoarding Disorder. These treatments include; CBT, SSRI medication treatment. I would also suggest Exposure therapy may also be helpful for the person to gain insight and gradually understand that these possessions do not necessarily need to be kept and understand their own thought patterns behind the behaviour.
Conclusion
Hoarding although chronic in course and can affect a persons life increasingly treatments have been seen to be effective in retraining a persons thought patterns and behaviours to acknowledge that the do not need to keep hold of possessions that are not required. These treatments may help the person to gain insight into their illness and try to understand why they hold beliefs about discarding possessions. Successful support and assistance however is the most important step. Treating someone with CBT away from the hoarding environment may prove to be ineffective, truthfully individuals need to be treated at home where their disorder stems from and disrupts to truly make a difference.
Personally, I am quite a sentimental person so I do have memory boxes on my bookshelf and a jar full of corks from special events which I am going to reuse and make into some art…you may see it eventually. I wouldn’t say I’m a hoarder in the slightest but I do attach sentimental values to items I suppose if I was a good at writing journals or scrapbooks then the memory boxes may be different but lets face it this blog I suppose could be considered hoarding of information and memories lets just remember the look back over 2015 posts. As with any mental condition it comes down to the person’s ability I believe to cope effectively if their disorder is clinically distressing and impedes on their life then clearly some intervention is required but I wouldn’t say that keeping hold of things which are sentimentally significant is a bad thing because well I do it. So please don’t think that I think keeping things that are sentimentally valuable or collecting things that you may feel is valuable or necessary is a bad thing, it is just when these need to keep and not discard anything impinges on your life that these beliefs and behaviours need to be addressed.
Further Information;
NHS;http://www.nhs.uk/conditions/hoarding/Pages/Introduction.aspx
OCD UK; http://www.ocduk.org/hoarding